Advocacy for Chronic Pain & Rare Diseases

Advocacy for Chronic Pain & Rare Diseases

Many EDS Awareness Items are available at this shop! Get yours today! They aren’t easy to find! http://www.zazzle.com/artworkbytracey   Just this past month or so I’ve decided to be an advocate on spreading awareness of Ehlers-Danlos Syndrome, Chronic pain and other rare disease. There is just such a need for the medical community to do more research on these things. Many of us suffer from these medical issues and our conditions are not understood by many in the medical community as…

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Did you know our EDS normal was Weird?

Did you know our EDS normal was Weird?

Many EDS Awareness Items are available at this shop!  Get yours today!  They aren’t easy to find!   http://www.zazzle.com/artworkbytracey         The more I age the more I have to ask myself this question. What do I think is normal about my body that isn’t normal at all? Each of us grew up knowing the things our bodies could do and the things it couldn’t do. As such, we just thought that what we could do was the…

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My Amazing Recovery From a Burst Cerebral Aneursym- True Story

My Amazing Recovery From a Burst Cerebral Aneursym- True Story

 Many EDS Awareness Items (and other Rare Diseases Awareness items, too)  are available at this shop! Get yours today! They aren’t so easy to find! All Original Artwork by Tracey! www.zazzle.com/artworkbytracey   My Amazing Recovery From a Burst Cerebral Aneursym- True Story!   (You can find Parts One and Two of my true story below in case you haven’t read it and would like to start at the beginning). As I laid in that hospital bed all I knew for sure…

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The Truth about Blogging as seen by a Newcomer

The Truth about Blogging as seen by a Newcomer

The Truth about Blogging as seen by a Newcomer!   (PART 2 of the Series)   I want to start Part 2 of this series out by telling you that I’m beginning to feel really overwhelmed. That is the true reality of it! However, I will not be quitting.  I knew it wouldn’t be easy to build a successful blog.  There is just so much to learn if you want to be successful at having a money making blog. I’ve been…

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Doctor, Doctor…..Please Help me, Doctor!

Doctor, Doctor…..Please Help me, Doctor!

 (This is Part 2 of my Series of My True Story about Having Vascular Ehlers-Danlos Syndrome)     Many EDS Awareness (and other Rare Diseases, too) Items are available at this shop! Get yours today! They aren’t so easy to find!  Original Artwork by Tracey!   www.zazzle.com/artworkbytracey     This was a very scary time in my life. As I woke up each morning feeling lost in a huge cloud of uncertainty as to what my future held in store…

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Our Different Reactions to Chronic Pain!

Our Different Reactions to Chronic Pain!

Our Different Reactions to Chronic Pain! Isn’t it funny how we all have our own way of dealing with pain? Some of us lash out at everyone and everything in sight while others simply get quiet and deal with it alone. I was wondering why we all react so differently to pain. Any thoughts on that? I realize we are individuals and we each do things differently. And maybe it also has to do with the fact that each of…

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Getting ready for the Summertime Blues…?

Getting ready for the Summertime Blues…?

Getting Ready for the Summertime Blues…? Yes, it’s that time of year!  Time to start preparing to have a fun and exciting summer.  And, also time to prepare to keep everyone safe!  One of the biggest problems that I have in the summer is those nasty, vicious and very hungry pests– MOSQUITOES!  They have quickly ended many a fun evening for myself, my family and many friends.  So, in my opinion, I would have to say they are the most…

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The Basic Features of Ehlers-Danlos Syndrome

The Basic Features of Ehlers-Danlos Syndrome

  The Basic Features of  Ehlers-Danlos Syndrome     Ehlers-Danos Syndrome is a rare genetic condition that affects children and adults.  It comes in various types. The type I have is called Vascular EDS. It is the worst of the types because it is the most life threatening. It causes aneurysms in various areas of the body. Usually in the head, heart area and abdomen. At 56 years old, I have had at least five that have burst. And, I…

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Do I die today?

Do I die today?

Do I die today?   (This is Part One of a Series of  my own True life experience.  I hope you will return to read more of the story.)     Growing up my parents thought of me as quite a fragile child. I was always having one ache, pain or accident that resulted in a substantial injury. I remember at times that doctors would even tell my parents there was nothing wrong with me (even though I truly was…

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How to Slow Down Time ⌛️ — MakeItUltra™ Psychology

How to Slow Down Time ⌛️ — MakeItUltra™ Psychology

“How did it get so late so soon?” ~Dr. Seuss 1. Live for now, not for later We can only experience happiness in the present moment. Just because we are in the middle of a mundane project does not mean we cannot reflect on this fortunate opportunity to participate in the dance of life. Our moments are so […] via How to Slow Down Time ⌛️ — MakeItUltra™ Psychology   http://wp.me/p7oCvy-7C     The Basic Features of Ehlers-Danlos Syndrome    

i take pride for u raised me right — mySestina

i take pride for u raised me right — mySestina

i take pride as you raised me right you were tough you were polite when I searched for the meaning of life you gave me the vision to a brighter side when I lost my courage you pushed me to fight in your strong yet loving arms I could always hide when nights were long […] via i take pride for u raised me right — mySestina   http://wp.me/p7oCvy-7C   Getting ready for the Summertime Blues…?      

Do you see the tiny treasures of life….?

Do you see the tiny treasures of life….?

    Do you see the Tiny Treasures of Life?   Jacqueline sat on the back deck drinking her cup of strong morning coffee.  Such a peaceful way to start the day!  “And, what a lovely day it is,” she remarked to herself!   She listened as the birds softly chirped and sang their morning songs.  They flew above her in the crisp morning air, playing silly bird games with one another as they passed the time away.   She…

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Do Better — with harmony

Do Better — with harmony

(Photo by Joe Mazza at Brave Lux) I’m a stage actor based in Chicago. I’ve been a working actor for ten years. I have been very lucky in my career in many ways. I have worked with and for incredible people. I have also heard this: . -“You really need to lose some weight if you want […] via Do Better — with harmony     The Basic Features of Ehlers-Danlos Syndrome    

The Truth about blogging as seen by a newcomer!

The Truth about blogging as seen by a newcomer!

Part ONE of a series:   (I will be adding more parts as I travel through the new world of blogging.  So, if you’re considering blogging, you may want to be sure to follow me for more information I gather as I go along).     THE TRUTH ABOUT BLOGGING AS I SEE IT PART ONE:   I’d like to start out by telling you that I’m not a tech savvy individual. And what I’m about to explain to you,…

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It’s finally Spring!

It’s finally Spring!

     Spring is Finally here!                 I’m so happy to see winter coming to an end!  Spring is such a beautiful time of year. Once again the birds are chirping their lovely mating calls and songs! New plant life peeks its beautiful head out of the hard cold ground. The trees are blooming as the sun shines brightly above. New birth is all around us! You can hear the sounds of the…

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Going through the “Empty Nest Syndrome”

Going through the “Empty Nest Syndrome”

Going through the “Empty Nest Syndrome” As a lady in her 50’s, all of my children have now left home. I never realized how different life would be when they were all gone. It wasn’t something I had ever given much thought to. Occasionally laughing with friends, we would claim that we couldn’t wait for the day they would all be on their own! We would talk of the things we would do during that glorious time! Yet now that…

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Welcome to my Blog, “Sarah Says!”

Welcome to my Blog, “Sarah Says!”

    First of all, “Hello to all! I want to thank you for checking out my new website and blog! If there is any subject that you would like to discuss, please let me know. If I don’t know anything about it, I will research it so we can have a good conversation about the subject! I’d really like this to become a place you come daily.  There is so much we can learn from each other and so…

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Hello world!

Hello world!

    Welcome to my new website!  I’m so excited you’ve stopped by!  I’m hoping you will find this a place you’d enjoy coming on a daily basis!  This site will be a place of positivity only.  I will immediately remove any traces of negativity.  I want my members to have a happy place to come!  I want you to only experience joy and happiness here, and I want to remind you of all the wonderful things in the world…

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